October 23, 2019, Kailua, HI. Requests from a number of community-based organizations for presentations on several topics of interest, varying from “Exercises for the Elderly,” to “Nursing Management of the Patient with ALS,” keep ALSFH and its mission in the minds of the audience. It is customary to save a few minutes after presentations for a short spiel on ALSFH.
Maylynn Wong, Manager of St. Francis Healthcare Volunteer Programs, organizes course offerings for groups of family caregivers interested in a variety of caregiving topics. For a nominal fee of $10 per class, people can sign up for these quarterly offerings. On September 18, Divina presented on “Introduction to Care of pALS in the Home,” with John and Sandy Repczynski providing the patient and caregiver perspective – a role that, in the past two years, pALS Shawn Brewer and wife, Renee, played just as effectively.
Last October 15, the Community Home Care Association of Hawaii, a large group of foster care home administrators, invited Divina to talk on “Exercises for the Elderly,” a topic relevant to their care of intermediate care facility (ICF)-level residents in the caregivers’s homes. At the end of the session, Divina talked about an ALS Residence specifically for pALS that is being planned for Hawaii.
The next day, October 16 was the annual Fall Colloquium for the UH JABSOM Department of Communication and Speech Disorders. This time, the audience is composed of graduate students in Speech Pathology – future therapists who will play a significant role in the lives of pALS and their families. In this colloquium, Divina discussed “ALS as a Communication Disorder,” with the help of Sandy and John Repczynski whose perspective as caregiver and pALS has a tremendous impact on how these future service providers deliver care.
And finally, on October 2, Divina partnered with Terryn Davis, ALS Association-Golden West Chapter Care Manager for Oahu to discuss ALS and what it takes to care for pALS in homes and acute care settings so readmissions are reduced, or altogether, eliminated. This was a response to a request from HMSA’s Integrated Case Management Department’s Manager, Kerianne and Lynn Muramaru, LSW. The audience comprised mainly of RN’s who provide home care service and social workers who follow-up pALS when discharged. Powerpoint presentation, handouts, and brochures were distributed to aid the hour and a half presentation.
ALSFH Board welcomes any request for presentation on topics related to ALS Care or Nursing, in general. In meeting community education needs, the BOD is able to find opportunities to disseminate information about ALSFH and its mission.