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Partnering with St. Francis Healthcare on ALS Caregiver Training

March 10, 2019, Kailua, HI. By invitation of Maylynn Wong, Manager of the St. Francis Healthcare Family Caregiver Training Programs, Divina Telan Robillard and partners, Shaun and Renee Brewer, presented a two-hour session of “Care and Perspectives: ALS Care” last Saturday, March 2, 9-11 am at Weinberg Bldg. St. Francis Healthcare provides caregiver training to the community for a small fee, on different aspects of caregiving at home.  Late last year, Wong, Telan Robillard and Katherine O’Connor discussed offering ALS caregiving…

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Santa Drops In On ALS Community Holiday Party!

December 26, 2018, Kailua, Hi. On December 18, the Hawaii ALS Community on Oahu held its Annual Christmas/Holiday Party, for the first time on the lanai of the Central 7th Day Adventist Church on Nuuanu Avenue.  It was a beautiful Tuesday afternoon when the Celebrations Committee descended upon the lanai with the trimmings of the decades-long annual event: food, Christmas decor, and raffle prizes!     Assistant Pastor JR Bonilla, who blessed the food, also treated the families to a…

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Bowling Fundraiser Deemed a Success

November 20, 2018, Kailua, HI.  The first public fundraiser that ALSFH held at the historic Pali Lanes on Saturday, November 10, 2018 in Kailua was described as “successful.”  A grateful and smiling ALSFH President Divina Robillard said,”The rest of the board was reluctant at first because of what looked like a lot of work to be done in so little time. And it was work we had never done before!  But they eventually came around and it got done!”  The…

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Forging Relationships with Hawaii Neuromuscular Alliance

July 26, Camp Erdman, North Shore, Oahu.  Hawaii Neuromuscular Alliance (HNA) picked up where MDA-Hawaii left off.  MDA-H did not arrange for its annual summer camp for kids with neuromuscular disorders this year.  A grassroots campaign led by Dr. Doug Miles, neurologist from Queen’s Medical Center, was able to organize one in time before the kids and volunteer counselors go back to school next month.  Five campers and eight volunteer counselors plus four adult staff enjoyed five days of organized…

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