Service provision – ALS Foundation of Hawaii

REFLECTIONS ON SOCIAL DISTANCING: HOW ARE WE “BEHAVING” IT?

March 25, 2020

The World Health Organization handbook, “Managing Epidemics: Key Facts about Major Deadly Diseases,” identifies four different stages: 1) Emergence: the introduction of the disease into a community;2) Localized transmission: where cases of infection sporadically appear in a community;3) Amplification: where the germ is able to transmit from person to person and causes a sustained outbreak in the community, threatening to spread beyond it; and4) Reduction: decrease of human-to-human transmission of the germ because people develop immunity and/or effective interventions to…

Donate HA Miles to pALS Risati and wife Mona!

June 10, 2019

ALS awareness, Help pALS, Service provision

If you are here to donate Hawaiian Air miles to Risa’s cause: Click on this linkhttp://hawaiianair.custhelp.com/app/answers/detail/a_id/383/~/share-%2F-transfer-hawaiianmiles-between-accounts The account that the Fuimaono’s use is under MONALISA FUIMAONO, account number 303930184. In that link, you will find the step-by-step instructions to share your miles. On behalf of Mona and Risa, we thank you for your compassion. If you want to know WHY you should donate to the Fuimaono’s, please read on: Risati Fuimaono has lived with ALS (Amyotrophic Lateral Sclerosis or Lou…

Presenting to Parish Health Ministries

March 24, 2019

ALS awareness, Networking/Learning Opportunities, News, Service provision

24 March 2018, Kailua, HI. Under the leadership of Bonnie Delos Santos, a registered nurse who recently retired from Cedar Sinai Hospital in California, the St. John the Apostle and Evangelist Health Ministry Committee is in charge of organizing activities that motivate the Church membership to be health-conscious as part of Catholic Christian living. On Saturday, March 23, during the Committee’s monthly meeting, Divina Telan Robillard presented on ALS, the ALS Foundation of Hawaii, and Volunteer needs of the ALS…

Partnering with St. Francis Healthcare on ALS Caregiver Training

March 10, 2019

ALS awareness, Partners, Service provision, Uncategorized

March 10, 2019, Kailua, HI. By invitation of Maylynn Wong, Manager of the St. Francis Healthcare Family Caregiver Training Programs, Divina Telan Robillard and partners, Shaun and Renee Brewer, presented a two-hour session of “Care and Perspectives: ALS Care” last Saturday, March 2, 9-11 am at Weinberg Bldg. St. Francis Healthcare provides caregiver training to the community for a small fee, on different aspects of caregiving at home. Late last year, Wong, Telan Robillard and Katherine O’Connor discussed offering ALS caregiving…

ALSFH Presents ALS Care and Perspectives to Family Caregivers

February 28, 2019

ALS awareness, Service provision

Kailua, HI, February 28, 2019. At the invitation of Maylynn Wong, St. Francis Healthcare System Manager of Family Caregiver Training Programs, Divina Telan Robillard will present “Living with ALS: Care and Perspectives” to a group of family caregivers in the community. Shawn and Renee Brewer, long time advocates of ALS Residence, will assist in presenting the perspectives part, after Robillard discusses the care portion of the presentation. Two years ago, Robillard and the Brewers started presenting jointly on these aspects…

ALSFH Presents at Leeward CC Filipino-American History Month Panel Discussion

October 25, 2018

ALS awareness, Service provision

October 25, 2018, Kailua, HI. October is traditionally celebrated as Filipino-American History month. For Leeward Community College’s Professor Raymund Liongson, a focus on the Filipino Woman is an appropriate way to understand Filipino-ness. Thus, “Pinay: the Filipina (Women) American Mind, Voice, and Power” was presented on October 18, 2018 to students and staff. UH Professor Emeritus Dr. Virgie Chattergy discussed how the book, “Pinay: The Culture Bearers of the Filipino Diaspora,” she co-edited with Pepi Nieva was organized around Filipino…

ALSFH Visits Cheryl Kellett at Home

September 23, 2018

ALS awareness, Service provision

After an acute episode of pneumonia, Cheryl Kellett decided to leave the nursing home. She wanted to spend the last days of her life at home in the care of a hospice team. Her family supported her decision. Home is in Kalihi, where the loving family reconfigured their living room so Cheryl can look out into the street through the picture window and see who’s at the door. ALS is an isolating disease; situating the ill person in a place…