Events

“Lei of Remembrance” Memorial: A Fitting End to May, 2019 ALS Month-long Celebrations

Honolulu, Hawaii – It is an annual ritual – the fifth, this year – that our ALS community celebrates the Friday before the public’s Memorial Day. We bring out the signs that says, Mahalo, Hawaii!, to set the mood. Our state began celebrating “May as ALS Awareness and Families Appreciation Month,” with the Governor’s Proclamation in the Capitol, in City and County of Honolulu, and in other neighbor islands. We focused our attention into creating the social, educational, and political…

0
Read More

“With Grace” Run/Walk/Roll Energizes!

           The 5th Annual “With Grace” Run/Walk/Roll went off with a bang at 8 am at Kailua Beach with a record 270 registrants making their way through Lanikai Loop. At the starting line, race coordinator, Julie Hess, stood on a cooler to thank the participants and reminded them what they were supporting – the race for a cure for ALS. After the short talk, husband Steve Hess, sounded off the horn to start the race. While…

0
Read More

The Queen’s Medical Center Social Workers Learn About ALS Care

May 11, 2019, Honolulu, Hawaii.  “How to Help Families with ALS” was presented to members of The Queen’s Medical Center Social Work Department on Tuesday, May 7, at the Queen’s Conference Center. The hour-long PowerPoint presentation which I anchored, ably assisted by Ronaele and Katherine, both retired social workers, discussed the characteristics of ALS, implications for family care, and community resources available.  It was richly enhanced by personal experiences from all three of us from our own journeys with ALS…

0
Read More

A Well-attended Governor Ige Proclamation!

May 11, 2019, Honolulu, Hawaii.  Last Friday, May 3, a group of community supporters attended the Governor Ige Proclamation of May as ALS Awareness and ALS Families Appreciation Month. This was the biggest group thus far in the five years of celebrating May as ALS Month in Hawaii. For the first time, the Lieutenant Governor substituted  for the governor who was not available that day.  LG Josh Green is not new to ALS families concerns.  ALSFH Board members Whittington, O’Connor,…

0
Read More

Mayor Caldwell Proclamation: First ALS Awareness Month Event on Oahu

May 11, 2019, Honolulu, Hawaii. A small but dedicated group of ALS supporters skipped afternoon nap time to attend the 2:30 pm Mayor Caldwell Proclamation of “May as ALS Awareness and ALS Families Appreciation Month” at the Mayor’s Conference Room at Honolulu Hale. The simple ceremony was led by City Managing Director Roy Amemiya for the second time in as many years the Mayor Proclamation was held in Honolulu. After MD Amemiya received the lei from Ronaele, he asked the…

0
Read More

ALS Community Prepares for “May as ALS Awareness and ALS Families Appreciation Month”

Kailua, Hawaii.  The ALS Community in Hawaii has a long history of being organized around a support group that started in 1998.  Joyce Okahashi and I worked with Kathleen Hurtubise-Lin, then Muscular Dystrophy Association-Hawaii Executive Director, to set up the first ALS Support Group. From then, a number of support groups across the state has been organized by the ALS Association (ALSA).  Kauai and the Big Island now have regular monthly support group meetings.  On Oahu, support group meetings are…

0
Read More

ALSFH Attends 30th Legislature Opening Day

  January 20, 2019, Kailua, HI. The 30th Legislative session opened on Wednesday, January 16, 2019. At 10 AM, the program within the stately Senate floor started with Temporary Chair, Senator Kaiali Kahele (District 1-Hilo) pounding the gavel and calling the Senate to order. The anthems brought attention to the historic meaning of the session opening day to  state governance. Chief Justice Mark Recktenwald swore the elected Senators to office, after which Senate President Ron Kouchi was formally elected. Senator…

0
Read More

Hawaii ALS Community Yard Sale This Saturday!

December 13, 2018, Kailua, HI.  The 11th Annual HI ALS Community Yard Sale celebrates two firsts on Saturday, December 15, 2018.  For the first time, the yard sale will be held in wintertime AND organized by the UH JABSOM Department of Communication and Language Disorders graduate students led by Haleigh Smith and Renee Martin. The Department of Communication and Language Disorders (DCLD) trains students in Speech Pathology, a discipline that helps pALS communicate when their speech muscles are affected by…

0
Read More

ALS Community Holiday Party Set for December 18!

December 4, 2018, Kailua, HI.  The annual Holiday Party for the Hawaii ALS Community is being moved to a new location. The party will be held on Tuesday, December 18, at the front lanai of the Central Seventh-Day Adventist Church on 2313 Nuuanu Ave.  The past 10 years, the party was held at the back lanai of the Philippine Consulate General (PCG) on Pali Highway. The PCG is currently undergoing renovation. The Ad Hoc Celebrations Committee of the HI ALS…

0
Read More

HiNAMI Recognizes Teaching Volunteers for the 17th Year: ALSFH was there!

November 19, 2018, Kailua, HI.  Since 2001, Hawaii Nurse Advocates and Mentors, Inc. (HiNAMI) has been offering free review classes to graduates of foreign nursing schools to help them pass the RN-NCLEX licensing examinations.  Current teaching and mentoring volunteer staff now include those who have been through these review classes themselves.  Founding President Bea Ramos-Razon is the energy and force behind this long-lasting community service that provides opportunities for professional nurses from academe and health care institutions to help swell…

0
Read More