Events

Celebrating May, 2022: Year Three of the Pandemic

For as long as I can remember, the fifth month of every year is celebrated as ALS Awareness and Families Appreciation Month in our community. And May is in a few days! The celebrations always start with the Governor issuing a proclamation to that effect and since the first proclamation, it had been always been held in the Governor’s Ceremony Room in the State Capitol surrounded by serious looking portraits of former governors hanging from dignified wall panels of koa…

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Julie Hess: An Eye for Art, A Heart for Earth

One doesn’t have to be a global leader nor a scientist to understand the impact of climate change on our planet.  Among other things, small island-states like our own in the vast Pacific stand to bear the brunt of rising waters.  This situation was made visually starker in a recent speech on the impact of global warming by Tuvalu’s minister delivered and filmed while knee-deep in ocean water. It was another global disaster – still possibly triggered by relentless development…

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MAY 2021 as ALS Awareness and Families Appreciation Month

We look back with fondness to the time when we were able to gather to celebrate May as OUR month. This coming May is the second during this time of Covid pandemic. Hawaii, like most states in the continental US is still under restrictions for public health security. Thus, our normally highly participated celebratory events are going to be just as quiet like last year’s. However, our efforts at bringing awareness to the community are no less robust and has…

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Our Year Thus Far, and the Fate of our Annual Holiday Party

You may have heard: our annual Hawaii ALS Community Christmas (Holiday) Party is not happening this year. Our venue for the past two years, the Honolulu Central Seventh Day Adventist Church, is not open for a party or crowds more than the number allowed by the health authorities. As a testament to the careful vigilance of our families, our community has not reported any case of coronavirus (knock on wood) thus far, and we’d like to keep it that way.…

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“Lei of Remembrance” Memorial Ceremony, 2020 Edition

23 May, 2020, Kailua, HI. This year, the “Lei of Remembrance ceremony will be presented in video form. Every year for the past six years, the annual celebration – the ultimate culminating annual May event here in Hawaii – has been held in the courtyard of the State Capitol. In support of the State’s plan to stem the pandemic, the ceremony will be streamed for the first time on 29 May, Friday at 5-5:30pm. Streaming site will be announced midweek.…

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Governor Ige’s and Mayor Caldwell’s Proclamations

May 13, 2020, Kailua, HI. Both the State Capitol and Honolulu Hale are closed to the public because of health requirements due to the current pandemic. On May 8, Friday, Governor Ige’s Proclamation of May, 2020 as ALS Awareness Month was received via email. The hard copy was not available although it had been requested. May 8 would have been the day when the ALS Community in Hawaii attends a solemn celebration at the Ceremony Room at the State Capitol…

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MAY, 2020 AS ALS AWARENESS MONTH: WHAT’S HAPPENING, HAWAII?

Short answer is: None, in person. The past six years, Hawaii’s ALS Community celebrated May as ALS Awareness and Families Appreciation Month in many ways. Usually, the month starts with a series of Proclamations by local officials. The Governor’s Proclamation was read by the Governor in a solemn ceremony in the State Capitol Ceremony Room attended by patients, their families, caregivers, and representatives of the different service provider agencies in the state. With the pandemic continuing to rage in our…

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Gleason House for pALS: The House that a Post-Hurricane Celebrity Built

January 14, 2020, Kailua, HI: Tomorrow, coinciding with the opening of the 116th US Congress in Washington, a man in a power wheelchair will roll on to receive the US Congressional Gold Medal of Honor, the highest civilian award given by Congress. It had been given to only 163 civilian entities, the first recipient being George Washington- the first President of the nation – in 1776. Steve Gleason, is truly a man of destiny. His celebrity arises from the confluence…

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An Open Letter to Bill Gates, on the Occasion of Receiving the Professor Hawking Fellowship Award

  Dear Bill, I just read your 2019 Professor Hawking Fellowship lecture delivered in Cambridge. I am grateful that you have taken up global health as focus for your philanthropy. My background is public (international) health, so I understood every bit of your concern.  I was born in the Philippines when it was still a developing nation.  In 1976, after graduation from Nursing, I joined the faculty of the UP Institute of Health Sciences. At that time, it was creating…

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Mahalo Nui Loa to Oahu Nursery Growers Association!

September 14, 2019, Honolulu, HI.   The Oahu Nursery Growers Association (ONGA) once again has proven that it not only plants flora and foliage, it also plants goodwill in the community.  The 8-member hui of nursery growers holds an annual plant sale from which it donates a portion of the proceeds.  At this year’s event, on September 7 (Saturday) and 8 (Sunday), 2019, ALSFH was its designated beneficiary.  The weekend sale was held at the Washington Middle School cafeteria on S. King Street.       During the…

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