Upcoming Events

Sun Mon Tue Wed Thu Fri Sat
Honolulu Mayor Kirk Caldwell Proclamation 2:30 pm
Honolulu Mayor Kirk Caldwell Proclamation
May 2 @ 2:30 pm – 3:30 pm
Honolulu Mayor Kirk Caldwell Proclamation @ Honolulu Hale Mayor's Conference Room 3rd floor
Public is welcome to join the Hi ALS Community in celebrating May as ALS Month with a proclamation from Mayor Kirk Caldwell.  The event will kick-off a number of events during the month on Oahu to enhance the public perception of disabled people and their families, especially those living with ALS.  The month also celebrates the incredible resilience of families living with ALS and their support of their pALS. Light refreshments will follow the proclamation, together with photo ops.  Please…
Mayor Caldwell Proclamation 2:30 pm
Mayor Caldwell Proclamation
May 2 @ 2:30 pm – 3:00 pm
Mayor Caldwell Proclamation @ Honolulu Hale Mayor's Conference Rm 3rd floor
Please RSVP by noon, Wednesday, May 1, 2019.  Much Mahalo.
May 3: Governor Ige Proclamation of “May as ALS Month” 11:15 am
May 3: Governor Ige Proclamation of “May as ALS Month”
May 3 @ 11:15 am – 11:45 am
May 3: Governor Ige Proclamation of "May as ALS Month" @ Hawaii State Capitol 4th floor Ceremony Room
Our Hawaii ALS Community has been celebrating “May as ALS Month” for the 4 years with a Proclamation from the Governor. It started with Governor Neil Abercrombie in 2014 and Governor Ige has continued the tradition. Join us for the 5th Governor Proclamation on May 3, Friday, 11:15 am at the State Capitol Ceremony Room, 4th floor. Stay for pictures with the group and Governor Ige and refreshments after.  Official photos will be available in the Governor’s official website and…
Presentation: “How Social Work Can Help People with ALS” 11:30 am
Presentation: “How Social Work Can Help People with ALS”
May 7 @ 11:30 am – 12:30 pm
Presentation: "How Social Work Can Help People with ALS" @ Queen's Conference Center 204
ALS has become a chronic illness for an increasing number of people with the disease (pALS).  Many times during the course of the disease, pALS may experience the need for acute care in hospitals where they encounter many staff members who are not familiar with care of pALS.  This presentation by a nurse and two retired social workers attempts to provide information as erstwhile health care workers as well as recent and current family caregivers of pALS. This presentation will…
5th Annual “With Grace” Run/Walk/Roll 8:00 am
5th Annual “With Grace” Run/Walk/Roll
May 11 @ 8:00 am – 11:00 am
5th Annual "With Grace" Run/Walk/Roll @ Kailua Beach Park
Julie Hess and her family – husband Steve and two boys Eli and Ren – volunteer their time to generate funds for the Project ALS’s research for a cure, in honor of their friend, Jeff Madelone, who has ALS. Jeff lives in California, with wife Maegan and daughter, Grace.  The fun family event, which follows Lanikai Loop, starts at 8 am. T-shirts are picked up at the race start area tents. Prizes and goodies will be announced after the race.…
“Mahalo, Hawaii” Sign-waving 4:30 pm
“Mahalo, Hawaii” Sign-waving
May 24 @ 4:30 pm – 5:00 pm
"Mahalo, Hawaii" Sign-waving @ Hawaii State Capitol Curbside
The May celebrations in honor of pALS and their families traditionally ends with sign-waving, a gesture of gratitude to the people of Hawaii who’ve paid attention to the needs of our ALS community. We look forward to engaging our state – her leaders and her people – in making sure ALL citizens, regardless of state of health, creed, gender, and political persuasion, are able to participate fully in the life of the community. Please join us in our end-of-May activities.…
“Lei of Remembrance” Memorial Ceremony 5:00 pm
“Lei of Remembrance” Memorial Ceremony
May 24 @ 5:00 pm – 7:00 pm
"Lei of Remembrance" Memorial Ceremony @ Hawaii State Capitol Ground Floor Courtyard
The last event of May celebrations for the HI ALS Community is a reflective ceremony honoring those who have died with ALS since 1998 when names of the dead were collected.  The ceremony begins with an ‘Oli, seeking blessings and assistance from the Hawaiian universe as our community rededicates itself to the cause of pALS and their families. Each death is remembered through the Hawaiian practice of lei-making: as each name is called, a member of the community comes up…