What’s New

Topical Presentations Keep ALSFH in Community’s Mind

October 23, 2019, Kailua, HI. Requests from a number of community-based organizations for presentations on several topics of interest, varying from “Exercises for the Elderly,” to “Nursing Management of the Patient with ALS,” keep ALSFH and its mission in the minds of the audience. It is customary to save a few minutes after presentations for a short spiel on ALSFH. Maylynn Wong, Manager of St. Francis Healthcare Volunteer Programs, organizes course offerings for groups of family caregivers interested in a…

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“Give ALOHA” to ALSFH #78937, by September 30!

September 23, 2019, Kailua, HI.  The annual “Give Aloha” Campaign of Foodland and Western Union Foundation in Hawaii started September 1st to continue the legacy of founder, Maurice “Sully” Sullivan of giving back to the community.  Sully’s Foundation matches individual contributions, dollar for dollar, up to $249.  Foodland gives more than $250,000 annually to non-profits that participate in the program. For the second time in a row, ALSFH signed up to participate in the  program. To donate to ALSFH, one simply…

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Mahalo Nui Loa to Oahu Nursery Growers Association!

September 14, 2019, Honolulu, HI.   The Oahu Nursery Growers Association (ONGA) once again has proven that it not only plants flora and foliage, it also plants goodwill in the community.  The 8-member hui of nursery growers holds an annual plant sale from which it donates a portion of the proceeds.  At this year’s event, on September 7 (Saturday) and 8 (Sunday), 2019, ALSFH was its designated beneficiary.  The weekend sale was held at the Washington Middle School cafeteria on S. King Street.       During the…

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Brian Burke, Katherine’s Li’l Brother, Dies at 61

Brian Burke’s life story was not always a sad one.  He was born the youngest of five children to Cecilia and Darrell Burke.  Like any health boy, Brian grew up with his family, which included Big Sis Katherine, in Benton Harbor, Michigan.  Early life was the usual – elementary, high school, an Associate degree in college. He didn’t engage in any sport but football and basketball occupied his interest as a bed-bound spectator in the years he had ALS. Sometime before 2002, when…

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MAHALO, St. John Apostle and Evangelist Parish, for ALSFH Display Corner

July 23, 2019, Kailua, Hawaii. Last Saturday, July 20, 2019, The St. John Apostle and Evangelist (SJAE) Parish in Mililani staged its first ever Health and Well-being Fair at the Kipapa Park grounds. The fair was organized by the parish’s Health Ministry Committee, ably led by retired nurse Bonnie delos Santos. After the invocation and warmup Tai Chi exercises led by a community volunteer, Wini Fronda of Humana and parishioner Steven Santiago led the walk around the park perimeter. It…

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Mahalo to Pacific Business News for Featuring ALSFH in July Signature Event

July 20, 2019, Honolulu, HI. Every month for their Signature Events, Pacific Business News (PBN) features a non-profit the news journal determines best fits the theme for the event. Among others, the recognition awards inclusion of logo in the marketing instruments for the event, a display table to showcase the non-profit’s mission, lunch for two representatives from the NP, and an opportunity to network with the other participants. On July 18, 2019, PBN featured ALSFH for its signature event “State…

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“Lei of Remembrance” Memorial: A Fitting End to May, 2019 ALS Month-long Celebrations

Honolulu, Hawaii – It is an annual ritual – the fifth, this year – that our ALS community celebrates the Friday before the public’s Memorial Day. We bring out the signs that says, Mahalo, Hawaii!, to set the mood. Our state began celebrating “May as ALS Awareness and Families Appreciation Month,” with the Governor’s Proclamation in the Capitol, in City and County of Honolulu, and in other neighbor islands. We focused our attention into creating the social, educational, and political…

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Donate HA Miles to pALS Risati and wife Mona!

If you are here to donate Hawaiian Air miles to Risa’s cause: Click on this linkhttp://hawaiianair.custhelp.com/app/answers/detail/a_id/383/~/share-%2F-transfer-hawaiianmiles-between-accounts The account that the Fuimaono’s use is under MONALISA FUIMAONO, account number 303930184.  In that link, you will find the step-by-step instructions to share your miles.  On behalf of Mona and Risa, we thank you for your compassion. If you want to know WHY you should donate to the Fuimaono’s, please read on: Risati Fuimaono has lived with ALS (Amyotrophic Lateral Sclerosis or Lou…

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“With Grace” Run/Walk/Roll Energizes!

           The 5th Annual “With Grace” Run/Walk/Roll went off with a bang at 8 am at Kailua Beach with a record 270 registrants making their way through Lanikai Loop. At the starting line, race coordinator, Julie Hess, stood on a cooler to thank the participants and reminded them what they were supporting – the race for a cure for ALS. After the short talk, husband Steve Hess, sounded off the horn to start the race. While…

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The Queen’s Medical Center Social Workers Learn About ALS Care

May 11, 2019, Honolulu, Hawaii.  “How to Help Families with ALS” was presented to members of The Queen’s Medical Center Social Work Department on Tuesday, May 7, at the Queen’s Conference Center. The hour-long PowerPoint presentation which I anchored, ably assisted by Ronaele and Katherine, both retired social workers, discussed the characteristics of ALS, implications for family care, and community resources available.  It was richly enhanced by personal experiences from all three of us from our own journeys with ALS…

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