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Richard Tran: Helping Build an ALS Residence for Hawaii, One Burger at a Time

My niece, Darlene, who is one-half of my so-called “IT Department,” invited a couple of her friends from Seattle to spend a week on Oahu. One of them was Richard who laughed his funny way into our hearts.  He ended up extending his stay into Christmas, to participate in our annual holiday shenanigans, usually orchestrated by the young people in my big Filipino family. In short, my family took to him as he fell in love with Oahu hard.  He…

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May 2021 as ALS Awareness Month

…THEREFORE I, DAVID Y. IGE, Governor of the State of Hawaii, do hereby proclaim May 2021 as “ALS AWARENESS MONTH” in Hawaii and encourage citizens of the Aloha State to join me in raising awareness of ALS, support the efforts to combat the disease, and honor the patients and families who are demonstrating extraordinary resilience and resourcefulness while living with ALS….

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MAY 2021 as ALS Awareness and Families Appreciation Month

We look back with fondness to the time when we were able to gather to celebrate May as OUR month. This coming May is the second during this time of Covid pandemic. Hawaii, like most states in the continental US is still under restrictions for public health security. Thus, our normally highly participated celebratory events are going to be just as quiet like last year’s. However, our efforts at bringing awareness to the community are no less robust and has…

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Her Words, Not Mine

Part of our mission is making people aware about what life with ALS is like for both patient and his family. Prior to the pandemic, I was regularly invited to speak before groups, opportunities which I rarely refuse. I have been a nurse educator all my life and have tried every way of presenting material so it becomes vivid to my audience, so that they come away more understanding of the material. When I come short of that expectation, I…

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National Vietnam War Veterans Day: Why We Should Care?

The Vietnam War, also called the Second Indochinese War, was the longest war in United States history. That era was also a very divisive time in the United States, as well as through much of Europe and Australia. Many veterans didn’t return to parades down Main Street, didn’t receive the proper amount of recognition for their service, or were the focus of much protest. These veterans would come home to a country divided over the debate about the war. Many…

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Show Your Stripes: Rare Disease Day

I wonder if people are even aware that there is such a community. Probably not; until just a few years ago, our Katherine introduced me to a lady who advocates for this group. I even remember being interviewed, with Katherine, for Olelo to shed light on two of the more than 7,000 illnesses that are considered rare. Katherine talked about glioblastoma and I discussed ALS. Katherine could have covered both – since two of her brothers had rare diseases AND…

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On Christmas Eve

One of the most difficult things to do is to gather one’s thoughts THIS close to THE most artificial deadline of all time! Before today, all important things such as the Christmas brunch and dinner menus and what games to play this year, shall have been discussed and laid out days ago, before the store runs out of honey-glazed ham and before all the pan de sal is sold out. Preferably after Thanksgiving dinner… or maybe during Thanksgiving dinner, while…

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Our Year Thus Far, and the Fate of our Annual Holiday Party

You may have heard: our annual Hawaii ALS Community Christmas (Holiday) Party is not happening this year. Our venue for the past two years, the Honolulu Central Seventh Day Adventist Church, is not open for a party or crowds more than the number allowed by the health authorities. As a testament to the careful vigilance of our families, our community has not reported any case of coronavirus (knock on wood) thus far, and we’d like to keep it that way.…

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