What’s New

Christmas Caroling: A Delightful Service and Tradition**

The pandemic years certainly put a damper on a number of activities worth doing, especially those that encourage socializing and connecting with fellow human beings.  Sighs of relief were exhaled all over the world when the pandemic’s scourge was cut to a manageable level. Things are inching towards normal, including the revival of Christmas traditions that were severely verboten in the past two years.  One of these is Christmas caroling. On December 13 last year, an opportunity arose for a…

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#GivingTuesday: “Let the sun shine through…”

The basest of species, we are told, simply do not have the physical structure to provide the basis for complex emotions such as compassion. Paramecia and reptiles just don’t have it in them to feel anything beyond self-preserving “reactions” such as when in pain.  Only more developed species have awareness beyond themselves that shows “others” as something more than their next meal. I’m talking generalities here (I have to qualify my statement, before someone who’s watched Jurassic Park points out,…

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Celebrating May, 2022: Year Three of the Pandemic

For as long as I can remember, the fifth month of every year is celebrated as ALS Awareness and Families Appreciation Month in our community. And May is in a few days! The celebrations always start with the Governor issuing a proclamation to that effect and since the first proclamation, it had been always been held in the Governor’s Ceremony Room in the State Capitol surrounded by serious looking portraits of former governors hanging from dignified wall panels of koa…

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ALS Foundation of Hawaii: Status Report as of December 31, 2021

ALS FOUNDATION OF HAWAII STATUS REPORT as of DECEMBER 31, 2021 I. INTRODUCTION When we developed the concept for the ALS Foundation of Hawaii in 2016-17, we agreed to have one mission: to establish an ALS RESIDENCE that would provide the kind of long-term humane and effective specialty care that people with ALS (pALS) required and deserved using state-of-the-art technology. In the intervening years, however, we quickly learned that the festering need for short-term respite care for family caregivers has…

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Our Christmas Message to You: Thank You For Your Support!

At the First Christmas, Mary and Joseph’s task at hand was to find a place where the Messiah was to be born. In some ways, ALS Foundation of Hawaii has a similar mission: search for a place in which a tale of redemption could begin. People with ALS (pALS) who decide to live with ALS need a place where their potential for growth and development, may find fulfillment; not just a place to die in. Despite the relentless wretchedness of…

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Julie Hess: An Eye for Art, A Heart for Earth

One doesn’t have to be a global leader nor a scientist to understand the impact of climate change on our planet.  Among other things, small island-states like our own in the vast Pacific stand to bear the brunt of rising waters.  This situation was made visually starker in a recent speech on the impact of global warming by Tuvalu’s minister delivered and filmed while knee-deep in ocean water. It was another global disaster – still possibly triggered by relentless development…

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Justin Hendrix: “This is the End…NOT!’

Finally! Justin Hendrix’s book has come off the press. “This is Not the End”, a self-published collection of personal experiences, heartwarmingly describes Justin’s life starting from when he heard from doctors in 2012 that he was terminally ill with ALS and what he did with what he thought was left of his life following that grave pronouncement. While working on our brochure in early 2018, four people with ALS agreed to have their images on the brochure as the “faces”…

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Online Auction To Fund Lifesaving Treatment For Local Artist Eric Chun

September 23, 2021, Honolulu, HI – Local artist, waterman, and small business owner Eric Chun announced the launch of an online auction today to raise funds for lifesaving therapy in his battle against a disease that has taken multiple members of his family. Since his 2018 diagnosis of ALS, Eric has received cutting edge treatments in San Diego instrumental in prolonging his life and delaying debilitating disability. Eric now seeks to participate in a new treatment therapy which has shown…

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The Quest for Donated Wealth: My Take on the Mackenzie Money

The recent news about marital splits among the two wealthiest couples who also happen to be the source of staggering amounts of money given to philanthropy has created a brouhaha amongst us in the non-profit world. We in the Board speculated with interest what the divorces meant – and it’s not because we have in any direct way benefitted from the Bezos or Gates fortune before the splits. We are just too far from the center of wealth to attract…

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Richard Tran: Helping Build an ALS Residence for Hawaii, One Burger at a Time

My niece, Darlene, who is one-half of my so-called “IT Department,” invited a couple of her friends from Seattle to spend a week on Oahu. One of them was Richard who laughed his funny way into our hearts.  He ended up extending his stay into Christmas, to participate in our annual holiday shenanigans, usually orchestrated by the young people in my big Filipino family. In short, my family took to him as he fell in love with Oahu hard.  He…

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